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My name is Kirstin and everything changed one day when I was 12. Since then I have had 15 surgeries and an ever-growing list of rare and complex disorders.
I was diagnosed with Chiari Malformation and Syringomyelia at the age of 18. Shortly after I had the first of 4 brain surgeries. I recently had major spinal surgery to fuse my skull to my neck.
I am bed-ridden now, but previously was trying to do my PhD. Now I run support groups from my bed and finishing my psychology degree with the hope I can use my experience to help others when (if) I get better.
There are more surgeries to come and lots of work to try and get me functioning and its all out of my pocket as a disability pensioner.
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